Wildlife and nature

Animal shelters and rescues

Theater and dance

Rivers, parks and trails

Hunger and food

Schools and learning

Housing and homelessness

Community health

Mental health

Mentoring and foster care

Legal help and rights

Jobs and money help

Atlanta

The Triangle

Everywhere

The Collective Workshop

Royal Animal Refuge

Asian Americans Advancing Justice-Atlanta

Georgia Advancing Communities Together

Atlanta Writers Club

Cobb Collaborative

Bosleys Place

Jewish Fertility Foundation

Delery Rice

Terry Thompson

John Lauber

Jameson Parker

Kathy Thompson

Steven Rittmaster

Dale Traxler

Lewis Myers

Dan Jacobs

Videos

Long reads

About

Kennedy's Disease Association Essentials

KDA is at AANEM 2026! The KDA is proud to be exhibiting at the AANEM Annual Meeting this week. We're raising awareness for Kennedy's Disease/SBMA, and connecting with neurologists, researchers, healthcare professionals, and others who are working to advance understanding and treatment of neuromuscular diseases. We’re also pleased to have Dr. Abdullah Al Qahtani and Dr. Christopher Grunseich in attendance. Their continued work and commitment to Kennedy’s Disease/SBMA help strengthen connections between the clinical and research communities. If you're in the area, check out Dr. Al Qahtani's presentation, “To Infinity and Beyond: SBMA as a Model for Next Generation Biomarkers” on Thursday, October 1. We’re looking forward to learning from the experts at AANEM and continuing to build awareness, collaboration, and momentum around Kennedy’s Disease research and care. #KennedysDisease #SBMA #KDA #Research #RareDisease #AANEM2026

The Kennedy’s Disease Association is deeply saddened to share news of the passing of Dr. William R. Kennedy, a neurologist and scientist whose work shaped the scientific and clinical understanding of Kennedy’s Disease, laid the foundation for today’s global research efforts, and transformed the lives of individuals and families affected by this disease. Nearly six decades ago, Dr. Kennedy did something extraordinary. At a time when many individuals were misdiagnosed with ALS and left without answers, he carefully observed, listened, and followed the science. His work led to the identification of what we now know as Kennedy’s Disease, giving patients and families something deeply meaningful: an accurate diagnosis and a path forward with hope. His work advanced the genetic understanding of Kennedy’s Disease, identifying the location of the gene mutation and the mutation itself. What began in one lab has grown into a global research collaboration, involving scientists in many countries to better understand the scope and impact of this disease. Dr. Kennedy was known for his humility, kindness, curiosity, and deep respect for patients. His legacy lives on through every person diagnosed, every family supported, and every step forward in research to find a cure for Kennedy’s Disease. We extend our deepest condolences to the Kennedy family and honor Dr. Kennedy by continuing the work he began. We invite you to visit our website to read the full tribute: Remembering Dr. William R. Kennedy: A Legacy That Lives On for People Affected by Kennedy’s Disease. You’ll also find a link to the obituary, and learn how you can help the KDA honor Dr. Kennedy’s legacy. https://kennedysdisease.org/about-us/news-room/kda-news.html/article/2026/01/12/remembering-dr-william-r-kennedy-a-legacy-that-lives-on-for-people-affected-by-kennedy-s-disease Thank you, Dr. Kennedy. Your impact is immeasurable, and you will always be remembered.

Big congratulations to Dan Jacobs! Chef Dan has officially made the cut to compete in the main competition on the Tournament of Champions on the Food Network, starting March 1! This culinary showdown features some of the most talented chefs in the industry, and Dan is stepping onto that stage once again, representing not only his extraordinary culinary skill, but also the strength, resilience, and determination that inspire so many in the Kennedy’s Disease community. Please join the KDA in cheering Dan on in the Tournament of Champions, and come hear his powerful story firsthand at the KDA Conference. #FoodNetwork #TournamentofChampions #KennedysDisease #KDA #RareDiseaseAwareness

💙 Raising Awareness for Kennedy Disease We’re grateful to the students and Wellness Club at Iroquois Ridge High School irhs.wellness in Oakville, Ontario, Canada, for helping raise awareness of Kennedy Disease. Thank you for organizing an event to bring attention to this rare neuromuscular disease. Your efforts are helping more people learn about Kennedy Disease and the individuals and families affected by it. Thank you for standing with the Kennedy Disease community! 💙 #KennedysDisease #KennedyDiseaseAwareness #KDA #RareDisease #NeuromuscularDisease

Closer than ever! 💗🦓 #RareDiseaseDay #KDA #KDAConference2026 #rarediseaseawareness #kennedysdisease #SBMA

We’re excited to spotlight the voices shaping our 2026 KDA Conference! If you missed it the first time, we’re resharing a powerful video message from our keynote speaker, Dan Jacobs, who shares a preview of what he’ll bring to the stage. You can also learn more about Dan’s story and see our lineup here: https://ssw-kda-conference-144-26.pages.dev/speakers/

Conference

Collective

Collections

Account

Kennedy's Disease Association Essentials

More collections