Oct 211 likesWe're pleased to announce that Delery Cook Rice has joined the Kennedy’s Disease Association (KDA) as our first-ever Executive Director!Delery officially joined the KDA team on October 5, 2026. With more than 20 years of nonprofit leadership experience, Delery brings extensive expertise in fundraising, strategic development, disability advocacy, and building partnerships that make a meaningful difference in people’s lives. Her experience and passion for supporting individuals with disabilities and their families will help strengthen KDA’s work as we continue advancing research, providing education, and supporting individuals and families affected by Kennedy’s Disease. As the KDA enters this exciting new chapter, we look forward to the opportunities ahead and the difference we can make together. Please join us in welcoming Delery to the KD community! #KennedysDisease #SBMA #KennedysDiseaseAssociation #KDA #ExecutiveDirector #RareDiseaseLatest
Oct 211 likesWe're pleased to announce that Delery Cook Rice has joined the Kennedy’s Disease Association (KDA) as our first-ever Executive Director!Delery officially joined the KDA team on October 5, 2026. With more than 20 years of nonprofit leadership experience, Delery brings extensive expertise in fundraising, strategic development, disability advocacy, and building partnerships that make a meaningful difference in people’s lives. Her experience and passion for supporting individuals with disabilities and their families will help strengthen KDA’s work as we continue advancing research, providing education, and supporting individuals and families affected by Kennedy’s Disease. As the KDA enters this exciting new chapter, we look forward to the opportunities ahead and the difference we can make together. Please join us in welcoming Delery to the KD community! #KennedysDisease #SBMA #KennedysDiseaseAssociation #KDA #ExecutiveDirector #RareDisease
KDA is at AANEM 2026!♥ 7 · Sep 30
The Kennedy’s Disease Association is deeply saddened to share news of the…♥ 6 · Jan 18
Big congratulations to Dan Jacobs!♥ 5 · Feb 18
💙 Raising Awareness for Kennedy Disease We’re grateful to the students and…♥ 4 · Sep 30
Closer than ever!♥ 4 · Feb 28
#KDA #kennedysdisease #KDAConference2026♥ 4 · Feb 27
KDA is at AANEM 2026!
♥ 7 · Sep 30
The Kennedy’s Disease Association is deeply saddened to share news of the…
♥ 6 · Jan 18
Big congratulations to Dan Jacobs!
♥ 5 · Feb 18
💙 Raising Awareness for Kennedy Disease We’re grateful to the students and…
♥ 4 · Sep 30
Closer than ever!
♥ 4 · Feb 28
#KDA #kennedysdisease #KDAConference2026
♥ 4 · Feb 27
Partners and community
We're pleased to announce that Delery Cook Rice has joined the Kennedy’s Disease Association (KDA) as our…
Oct 211 likes
The Kennedy’s Disease Association is proud to launch KD Voices…
Oct 12 likes
KDA is at AANEM 2026!
Sep 307 likes
Dr.
Apr 282 likes
Start Your Fundraiser Any Time, Anywhere in the World!
Apr 24
KDA is pleased to announce our 2026 SBMA Research Grants and Waite-Griffin SBMA Fellowship programs.
Apr 163 likes
The 10th Annual Dim Sum Give Some is this Saturday, April 18th in Milwaukee, WI!
Apr 143 likes
Big congratulations to Dan Jacobs!
Feb 185 likes
The Kennedy’s Disease Association is deeply saddened to share news of the passing of Dr.
Jan 186 likes
About
Uniting to Conquer Kennedy’s Disease – Supporting Those Affected
We support patients and families affected by Kennedy’s Disease through education, resources, community connection, and research collaboration, while providing research funding to advance treatments and move closer toward a cure.
Our Goal Is Clear: To Help Find a Treatment or Cure for Kennedy’s Disease (KD)
Hills Park, Atlanta, GA
- Based in
- Hills Park, Atlanta
- Founded
- 2000
- EIN
- 77-0552005
- Website
- kennedysdisease.org
- @kennedys_disease_association
- Health