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CMT Research Foundation
The CMT Research Foundation is launching an innovative fundraising approach for CMT4C. Through the Community Leaders in

CMT Research Foundation · 9 posts

Patients

The CMT Research Foundation is launching an innovative fundraising approach for CMT4C. Through the Community Leaders inThe CMT Research Foundation is launching an innovative fundraising approach for CMT4C.Nov 3How can CMT patients get involved in research? The convention in September is a great start, but Early Bird RegistrationHow can CMT patients get involved in research?Jun 1732 likesFinding a reliable blood-based marker would make clinical trials more efficient and give doctors a straightforward way tFinding a reliable blood-based marker would make clinical trials more efficient and give…Mar 2726 likesThe CMT Research Foundation is funding a novel digital-endpoint project with Dr. Wolfgang Pernice at Columbia UniversityThe CMT Research Foundation is funding a novel digital-endpoint project with Dr.Feb 2019 likes2026 holds promise for Charcot-Marie-tooth disease patients and their families. CMTRF’s investment in critical research2026 holds promise for Charcot-Marie-tooth disease patients and their families.Dec 31, 20256 likesIf you joined us in Cambridge this past September, you witnessed something truly special: a powerful gathering of patienIf you joined us in Cambridge this past September, you witnessed something truly special…Dec 29, 202521 likesTRIPLE YOUR DONATION TODAY! cmtrf.org/TheGreatestGift Today is #GivingTuesday and all donations made before midnight areTRIPLE YOUR DONATION TODAY!Dec 2, 20254 likesFor families living with Charcot-Marie-Tooth disease, the greatest gift they could receive is hope for a cure. Tomorrow,For families living with Charcot-Marie-Tooth disease…Dec 1, 202513 likesImagine finally getting an answer for the symptoms that have been affecting you for years — only to hear your doctor sayImagine finally getting an answer for the symptoms that have been affecting you for years…Nov 18, 202517 likes

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Country Music Superstar Alan Jackson, who has been open about his diagnosis with CMT, is wrapping up his career with a fCMT Research Foundation EssentialsWe made the 2026 Global CMT Research Convention available for everyone! Browse every talk at cmtconvention.cmtrf.org.CMTRF orgOne of the greatest barriers to developing therapies for Charcot-Marie-Tooth (CMT) disease has been the lack of sensitivCharcot MarieWe made the 2026 Global CMT Research Convention available for everyone! Browse every talk at cmtconvention.cmtrf.org.ConventionAs the number of gene therapies in trials for CMT continues to grow, how those gene therapies are regulated will becomeTherapiesThe Zero K Fundraiser Run was a huge success, and we look forward to using the funds for driving CMT research toward a cCure