Medical research stories in The Triangle

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FDA Launches Rare Disease Framework Initiative: What It Could Mean for Our Community Highlights

A Cure In Sight

Oct 18 · Raleigh

medical research

Honoring the Life and Legacy of Nick Valvano

V Foundation

Oct 14 · Cary

medical research

The Inaugural V Foundation for Cancer Research Capital Epicurean Raises Over $720,000 for Cancer Research

V Foundation

Oct 14 · Cary

medical research

Can a Biopsy Help Predict Who Responds to TIL Therapy?

A Cure In Sight

Oct 14 · Raleigh

medical research

Why Uveal Melanoma Is Different, and What That Means for Treatment

A Cure In Sight

Oct 9 · Raleigh

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A Cure In Sight and UT Southwestern Bring the Ocular Melanoma Community Together at Eye Believe in Dallas

A Cure In Sight

Oct 8 · Raleigh

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Dr. Aden Mendoza Receives 2026 Neil Peart Neurosurgery Research Award - Glioblastoma Treatment & Research

Glioblastoma Foundation

Sep 30 · Durham

medical research

Alonzo Mourning Announced as Stuart Scott IMPACT Honoree at 6th Annual V Foundation for Cancer Research Boo-Yah

V Foundation

Sep 25 · Cary

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The 3rd Annual V Foundation for Cancer Research Chicago Epicurean Raises $1 Million

V Foundation

Sep 22 · Cary

Vmedical research

The V Foundation for Cancer Research Announces 2026 Dick Vitale Pediatric Cancer Research Fund Grantees

V Foundation

Sep 8 · Cary

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New Clues on Why TIL Immunotherapy Works for Some Melanoma Patients

A Cure In Sight

Aug 20 · Raleigh

Vmedical research

The V Foundation for Cancer Research Eclipses the $500 Million Milestone in Grant Award Funding

V Foundation

Aug 18 · Cary

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Advances in Ocular Oncology Offer New Hope for Patients and Families

A Cure In Sight

Aug 16 · Raleigh

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New Targeted Therapy Shows Early Promise for Metastatic Uveal Melanoma

A Cure In Sight

Aug 12 · Raleigh

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New Immunotherapy Research May Help Strengthen Future Cancer Treatments

A Cure In Sight

Aug 8 · Raleigh

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28th Annual V Foundation for Cancer Research Wine Celebration Raises Nearly $7 Million to Accelerate Breakthrough Cancer Research

V Foundation

Aug 3 · Cary

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New Research May Improve How Doctors Predict Metastasis Risk in Uveal Melanoma

A Cure In Sight

Aug 3 · Raleigh

Amedical research

A Cure In Sight Earns Charity Navigator’s 2026 Four-Star Rating

A Cure In Sight

Jul 28 · Raleigh

medical research

Hope Beyond a Rare Diagnosis: One Father’s Uveal Melanoma Journey Shows the Power of Clinical Trials

A Cure In Sight

Jul 22 · Raleigh

Vmedical research

The V Foundation for Cancer Research Announces Recipients for the 2026 Breaking Barriers in Cancer Research Grant Award

V Foundation

Jul 20 · Cary

medical research

New Blood Test Monitoring Tool Offers Additional Insight for Uveal Melanoma Care

A Cure In Sight

Jul 18 · Raleigh

medical research

Glioblastoma Foundation Marks 10 Years with New Push to Accelerate Personalized Treatment

Glioblastoma Foundation

Jul 14 · Durham

medical research

The V Foundation for Cancer Research and ESPN Announce Return of Annual ESPYS Week Charity Radio Auction

V Foundation

Jul 7 · Cary

medical research

WNBA Legends Unite Sports, Culture and Community in Support of the V Foundation for Cancer Research

V Foundation

Jun 23 · Cary

medical research

Why Glioblastoma Treatment is Becoming More Personalized - Glioblastoma Treatment & Research

Glioblastoma Foundation

Apr 8 · Durham

medical research

Phase 1/2a study on Lisavanbulin Published in Journal Cell Reports Medicine - Glioblastoma Treatment & Research

Glioblastoma Foundation

Aug 14 · Durham

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Genomic Testing: Transforming Glioblastoma Therapy - Glioblastoma Treatment & Research

Glioblastoma Foundation

Apr 11 · Durham

medical research

Glioblastoma Awareness Day July 17, 2019

Glioblastoma Foundation

Feb 4 · Durham

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Genomic Testing and 2021 World Health Organization Glioblastoma Classification - Glioblastoma Treatment & Research

Glioblastoma Foundation

Jan 14 · Durham

medical research

Glioblastoma Foundation® Acquires Drug Lisavanbulin - Glioblastoma Treatment & Research

Glioblastoma Foundation

Oct 24 · Durham

medical research

What is the Prognosis of Glioblastoma? - Glioblastoma Treatment & Research

Glioblastoma Foundation

Apr 12 · Durham

medical research

Pseudo-progression: A Key Focus Area

Glioblastoma Foundation

Sep 18 · Durham

FDA Launches Rare Disease Framework Initiative: What It Could Mean for Our Community Highlights

A Cure In SightRaleigh · Medical research · Oct 18 · 3 minute read

If you’re living with a rare disease, or caring for someone who is, you know how frustrating it can be to wait for treatments that seem to take forever to arrive. That’s why a new announcement from the U.S. Food and Drug Administration caught our attention, and we wanted to share it with our community.

On October 14, 2026, the FDA launched the Rare Disease Framework Initiative, an effort to rethink how treatments for rare diseases are developed and reviewed. As a patient-founded, patient-led community, we were especially glad to see patients placed at the center of this work.

According to the FDA’s white paper, about 30 million Americans, roughly one in ten, live with a rare disease. In the U.S., a disease is considered rare when it affects fewer than 200,000 people, and many affect far fewer. Yet only about 5% of recognized rare diseases have an FDA-approved treatment. The FDA also notes that many patients end up using treatments approved for other conditions because nothing has been proven for their specific disease.

The white paper is honest about the challenges. Patient groups are small and often spread out geographically, which makes clinical trial enrollment slow. Information about how a disease naturally progresses is often limited, and the tools commonly used in larger studies may simply not be available. The FDA says rare diseases need an approach based on the evidence that can realistically be gathered, the type of treatment, and what patients need, and that this approach should be used consistently across its review teams.

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A Cure In SightMedical research · Raleigh · 12 stories listed here

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