MTS Sickle Cell FoundationSickleCare Patient Assistance Program
The MTS Sickle Cell Foundation’s SickleCare Patient Assistance Program (SickleCare PAP) is designed to help reduce non-clinical barriers that may prevent individuals living with sickle cell disease from participating in clinical research.
Individuals living with sickle cell disease who are participating in clinical research · Participants must submit coordination requests at least 5–7 business days before their scheduled visit.
From mythreesicklers.org/sicklecare-pap-research-site-referral-confirmation ↗About this program
The MTS Sickle Cell Foundation's SickleCare Patient Assistance Program (SickleCare PAP) is designed to help reduce non-clinical barriers that may prevent individuals living with sickle cell disease from participating in clinical research.
SickleCare PAP provides supportive services such as transportation assistance, lodging support, meal support, and caregiver-related travel assistance, when applicable and based on available funding.
Important Notice: MTS Sickle Cell Foundation is not a clinical research site, sponsor, or medical provider. We do not provide medical advice and do not participate in determining clinical trial eligibility, enrollment decisions, or study outcomes.
Privacy & PHI Statement – To protect participant privacy and ensure compliance with research regulations, MTS Sickle Cell Foundation does not request Protected Health Information (PHI) from clinical trial sites. Research sites may submit a referral confirmation after obtaining participant permission, and participants must complete an intake form directly with MTS Sickle Cell Foundation to request assistance.
Questions
What does SickleCare PAP provide?
Gas, Rideshare, or Public Transit; Flights or Hotel Stay; Meals or Parking; Childcare or Caregiver Travel
How does the process work?
Research Site Referral Confirmation: A study site representative confirms that the participant has provided permission to be referred to SickleCare PAP. Participant Intake Form: The participant (or caregiver) submits their request directly to MTS Sickle Cell Foundation. Support Coordination: Our team reviews the request and, if eligible and funding is available, coordinates assistance to help reduce barriers to participation.
Does participation guarantee study eligibility or enrollment?
Participation in this program does not guarantee study eligibility or enrollment.
Details
- Who
- Individuals living with sickle cell disease who are participating in clinical research
- When
- Participants must submit coordination requests at least 5–7 business days before their scheduled visit.
Run by
Sickle Support FundA community-powered initiative of the MTS Sickle Cell Foundation created to provide consistent socioeconomic support to individuals and families affected by sickle cell disease.
ACADEMIC SCHOLARSHIPSRecognizing the challenges posed by SCD, this program aims to alleviate financial barriers to higher education.
GEORGIA PUBLIC LIBRARY INITIATIVEThis initiative leverages the massive reach of public libraries to disseminate crucial information about SCD across Georgia.