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MTS Sickle Cell Foundation Essentials

We are deeply saddened by reports of the death of 17-year-old Mamadou Djouma Bah of Guinea, who lived with sickle cell disease and died after developing complications while in custody. Our hearts are with his family and loved ones during this unimaginable time. Regardless of the circumstances that led to his detention, every person deserves timely, appropriate medical care—especially individuals living with chronic, life-threatening conditions like sickle cell disease. Sickle cell disease is not "just pain." A crisis can rapidly become life-threatening without prompt recognition and treatment. Delays in care can have devastating consequences. This tragedy reminds us why: 🔸️Healthcare access must never be compromised because someone is incarcerated. 🔸️Correctional facilities and law enforcement personnel need education on recognizing and responding to sickle cell emergencies. 🔸️Every healthcare provider should understand that sickle cell complications require urgent medical attention. 🔸️Compassion and dignity should remain at the center of care for every person, everywhere. At MTS Sickle Cell Foundation, we continue to advocate for better awareness, equitable healthcare, and systems that recognize the seriousness of sickle cell disease. No family should have to wonder whether their loved one would still be alive had they received the care they needed. #SickleCellDisease #SickleCellAwareness #HealthEquity #MedicalJustice #GlobalHealth SOURCE: https://www.bbc.com/news/articles/cn0nykz6lweo

✨ We’ve been looking forward to sharing this news! ❤️ Please join us in welcoming Akilah Murib Coleman as our keynote speaker for the 11th Annual Sickle Cell Awareness & Support Holiday Breakfast, joined by her husband, former NFL running back Tevin Coleman, and their family! For the Colemans, advocacy begins at home. As parents of twins Nazaneen, who lives with sickle cell disease, and Nezerah, who has autism, they understand the love, persistence, and support it takes to help children with complex needs thrive. Together, they use their voices to raise awareness, challenge misconceptions, and advocate for equitable access to care. Their shared belief is one we hold close at MTS: no family should navigate a diagnosis without information, resources, and support. Akilah brings the perspective of a mother, entrepreneur, philanthropist, and advocate committed to protecting the dignity and joy of childhood. We’re honored to hear from her and welcome the Coleman family for a day of education, connection, and holiday celebration! 🎄 📅 Saturday, December 19, 2026 🕙 10:00 AM–2:00 PM 📍 Flint River Community Center | Riverdale, GA Our event is SOLD OUT, but you can still be part of the impact. Help make this celebration special for families affected by sickle cell disease by becoming a sponsor or making a donation: https://mythreesicklers.org/holiday-breakfast/ #SickleCellAwareness #SupportSickleCell #StrongerTogether

Sickle cell affects more than the blood. Caring for it can take a whole team. ❤️ From eye and kidney health to pain management and emotional well-being, different specialists can play an important role in supporting people living with SCD. Every warrior’s needs are different—you may not need every specialist listed. Your hematologist and primary care provider can help coordinate care and referrals. You deserve care that sees and supports the whole person. 📌 Save this guide, share it with a caregiver, and use it to start a conversation with your care team. ************* ❤️ Help us support individuals and families living with sickle cell disease. Donate to our Sickle Support Fund today. https://givebutter.com/sickle-support-fund #SickleCellAwareness #SickleCellDisease #MTSSickleCellFoundation #WholePersonCare

More progress for the sickle cell community during Sickle Cell Awareness Month. ❤️ On September 23, Congresswoman Alma S. Adams, Ph.D., alongside Congressman Danny Davis and Senators Chris Van Hollen and Cory Booker, announced the reintroduction of legislation aimed at addressing one of the challenges our community knows all too well: access to comprehensive, specialized sickle cell care. The Sickle Cell Disease Treatment Center Act would help establish a national network of specialized sickle cell treatment centers—connecting comprehensive SCD expertise with community health centers and other providers so that quality care can reach more patients. And one part especially caught our attention at MTS Sickle Cell Foundation: ❤️ Community-based organizations are included in the model. The legislation recognizes that caring for people with sickle cell disease extends beyond the hospital. Education, outreach, care coordination, social support and trusted community partnerships all play a role. We know this firsthand. Every day, community organizations help families navigate the spaces between the doctor's appointment and real life—transportation, resources, education, research opportunities, support and simply knowing where to turn. This legislation was introduced alongside the Sickle Cell Care Expansion Act, which addresses another major challenge: strengthening the healthcare workforce available to care for people with SCD and supporting young adults transitioning from pediatric to adult care. We’ll be watching both bills as they move through Congress and continuing to advocate for systems of care that meet people with sickle cell disease where they are. ❤️🩸 Thank you to the congressional leaders continuing to bring national attention to the needs of the sickle cell community. #SickleCellAwarenessMonth #SickleCellDisease #SickleCellAwareness #SickleCellAdvocacy

📣✨ SICKLE CELL BILLBOARD ON I-75 NORTHBOUND, EXIT 233 MORROW/LAKE CITY EXIT 📣✨ September is National Sickle Cell Awareness Month and I am so happy to announce that the MTS Sickle Cell Foundation has secured a billboard on I-75 that will be home to some of our awareness efforts for the month of September. It's estimated to receive more than 2 million views from 8/31 to 9/27. I’m so grateful for the continued support that makes initiatives like this possible. With God first, and with your unwavering commitment, we are able to keep pushing awareness forward in bold and impactful ways. 🙏🏾✨🙏🏽🙏🏽🙏🏽🥳🎊👏🏾🙌🏾💃🏾🙏🏽🥳🥳🥳🥳🥳 #sicklecellawareness #sicklecell #sicklecellawarenessmonth #warriorstrong

Tell a friend to tell a friend that 📣 SEPTEMBER IS NATIONAL SICKLE CELL AWARENESS MONTH 📣 #sicklecellawareness #sicklecell #sicklecellawarenessmonth #warriorstrong

I have struggled to find the words for this one. The loss of Gershom “Bubba” Washington Jr. has weighed heavily on me, and my silence has felt louder with each passing day. I knew Bubba as one of the young warriors who grew up in and around our sickle cell community. I watched him mature, find his footing, and begin making choices that reflected the future he was working toward. Last year, I was proud to see him apply for our Warrior on the Rise Scholarship. Then, in June, he emailed me to share that he had made the Dean’s List at Kennesaw State University. That news was priceless because it represented growth, determination, and a young man continuing to push forward despite the challenges sickle cell disease placed in his path. What I did not fully understand until after his passing was how deeply connected he was to my own girls. Tully and Deej shared that Bubba had become like a big brother to them. They talked about life, hopes, dreams, hard days and good ones. Watching their grief has reminded me how deep the bonds are among young people in this community — bonds often formed through experiences only they truly understand. My heart is with Dr. Washington, his brother, his family, and everyone who loved him. There is also a truth that is becoming harder to carry: we live in a near-constant state of bereavement in the sickle cell community. We celebrate birthdays, graduations, scholarships, careers, marriages, babies and victories, while far too often being forced to grieve again. That is a heavy thing to carry. Tomorrow, Bubba’s family will celebrate his life. Although I will not be there in person, my heart will be with them. Bubba, I am grateful I got to witness even a small part of your journey, and grateful to now understand how much love and encouragement you gave to my girls. You mattered. Your progress mattered. Your dreams mattered. And you will be remembered. Rest well, Bubba. ❤️

MT ZION HIGH SCHOOL MARCHING BAND AT SCD BLOOD DRIVE

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MTS Sickle Cell Foundation Essentials