Wildlife and nature

Animal shelters and rescues

Theater and dance

Rivers, parks and trails

Hunger and food

Schools and learning

Housing and homelessness

Community health

Mental health

Mentoring and foster care

Legal help and rights

Jobs and money help

Atlanta

The Triangle

Everywhere

The Collective Workshop

Royal Animal Refuge

Asian Americans Advancing Justice-Atlanta

Georgia Advancing Communities Together

Atlanta Writers Club

Cobb Collaborative

Bosleys Place

Jewish Fertility Foundation

CureNFwithJack (“CNFWJ”) is a nonprofit corporation co-founded by Jack Burke, Jake Burke and Beth O’Brien, whose mission is to find an effective treatment or cure for individuals battling neurofibromatosis (“NF”) through the funding of research. The inspiration and motivation behind CNFWJ is their son Jack Burke, a dynamic, inspiring boy who lives with NF. CNFWJ is based in Milton, Georgia, and has been granted 501(c)(3) status.
CNFWJ is committed to accelerating medical research, driving community action, and raising funds to end NF. With Jack’s help, CNFWJ has encouraged thousands of people previously unfamiliar with NF to learn, donate and spread awareness about NF so that the vision of a cure can be realized. CNFWJ holds multiple events and golf tournaments throughout the year, raising over a million dollars on its own behalf as well as other NF-related entities [including the Children’s Tumor Foundation and Cupid’s Undies Run].
Central to CNFWJ’s goals is the involvement of and support from individuals who are not affected by NF. Your time, talent or treasure can have a profound effect on the many that suffer from this disorder. Through community interest, we can help change the face of this disorder.
We hope that creating awareness, bringing people together, and supporting the medical community in its research endeavors will lead to the day that NF no longer exists.
The mission of CNFWJ is to find an effective treatment or cure for NF through the funding of research.

Poker Tournament

Productive Conversations with Healthcare Providers

NF Community Webinar Program Series: Career Readiness

NF Education Day

Back to School: Navigating Education with a Rare Disease

Navigating Stress & Cultivating Wellness

Volunteer with CureNFwithJack

Give

CNFWJ Joins Cureage Therapeutics as a New Venture Philanthropy Investor

CNFWJ Has Joined The NF Collective

BETH O'BRIEN

JAKE BURKE

JACK BURKE

NANI PARKER

MARILEE HAMILTON

KEVIN COKER

TRISH RAMSTROM

KEVIN SWINDON

JON MARKS

Luke Burke

Isabella Mihalescu

Jack Mitchell

Scientific discovery has always been at the heart of CureNFwithJack's mission. We remain committed to investing in promising neurofibromatosis research, advancing therapeutic development, and strengthening scientific partnerships that move the field forward. As we look toward the future, we're also exploring how a deeper understanding of the experiences of people living with NF can help identify unmet needs and inform future research priorities. Our commitment to science remains unwavering. The opportunity ahead is to build on that commitment with an even clearer understanding of where progress is needed most. Because advancing NF research means continuing to ask bold scientific questions — and working together to find answers. #CureNFwithJack #EndNF #Neurofibromatosis #NFResearch

Register for Golf before EOY and Earn Free Raffle Tickets, Free Mulligans, & More! The CureNFwithJack Golf Tournament is returning on April 19, 2027, and we're giving early registrants an extra reason to get excited! Register for the tournament by December 31 for access to extra perks during your game. It's a great time to get your foursome together, start planning for spring, and support the research moving us closer to better treatments for NF. More to come! Golf Tournament: April 19, 2027 Early Registration Giveaway Deadline: December 31, 2026 Visti curenfwithjack.org

What started as a small get-together quickly turned into something much bigger! After making it official with just one month to bring it all together, Poker Night exceeded expectations! We welcomed 40+ players and more than 70 attendees, raising over $9,000 for CureNFwithJack!💙💚 The competition was fierce, the energy was high, and the cards kept flying until midnight! Pizza from @bobbygschicagoeatery312 and wings from @themiltontavern fueled the masses. A huge congratulations to our winners: 🥇 1st Place — $1,000 🥈 2nd Place — $750 🥉 3rd Place — $500 We also raffled off three bottles of whiskey to add a little extra excitement to the evening! A special shoutout to our Poker Maestro, Steve Yarish, and his incredible team for dealing the cards, keeping the game going, and making the night such a great time. To everyone who played, attended, donated, and helped bring this event to life — THANK YOU. Your support helps move us closer to a future without NF. Over $9,000 raised. 70+ people in the room. One shared mission. Thank you for staying with Jack! 💙💚 #CureNFwithJack #StayWithJack #PokerForACure #NFresearch

Happy Halloween from all of us at CureNFwithJack! Wishing you a Spooky Saturday! #curenfwithjack

TONIGHT! WIN BIG! Party and laugh! Support the cause!

JOIN US TOMORROW FOR POKER! Your Friday plans could be life-changing! This is more than just a poker tournament. It’s an opportunity to help us in our mission to find an effective treatment or cure for NF. The research we invest in has the potential to change millions of lives around the world. Be part of something bigger and go all-in for CureNFwithJack! Register today using the link in our bio! We can’t wait to see you there! #curenfwithjack #poker #pokertournament #alpharetta

Kick off Halloweekend with a little friendly competition for an incredible cause! 🎃 Register for our upcoming poker tournament and be part of something bigger than the game. This is more than just a poker tournament! It’s an opportunity to help advance critical NF research with the potential to change millions of lives around the world. GO ALL IN FOR A CURE. Make an impact. Register today! We can’t wait to see you there! 🃏 Register by clicking the link in our bio!

10 DAYS TO PERFECT THAT POKER FACE. ♣️ The countdown is real. We are so excited to see you at the table, hopefully in your best costume! Your next hand could change lives. Real change happens because of our events, and this is your chance to be part of that. Join us on October 30th, 2026 by going to the link in bio! #CureNFwithJack #PokerSeason #pokertournament #EndNF

October is Breast Cancer Awareness Month! Let's spread hope and stand together in the fight against breast cancer! 🎀 #BreastCancerAwareness

T-Minus Two Weeks until CureNFwithJack's Poker Tournament! We are all-in on finding a cure, and the money raised will go to life-changing research. Last year was a blast, and we can't wait to do it again! Join us (in costume!) October 30th at 7:00 PM. Register now by going to curenfwithjack.org or using this link: https://events.handbid.com/auctions/2026-oct-poker-tournament

The NF Collective is hosting its next webinar on October 28, 2026. Register to learn important skills, including how to prepare, ask thoughtful questions, and communicate effectively with healthcare professionals. We hope to see you there! #endNF #NFstrong #curenfwithjack

The Poker Tournament is back, but this time, it's official! Last year was so much fun and we know this year will be even better. We are so excited to see all of you on October 30th at 7pm at the Crooked Creek Clubhouse💙💚 Register now by going to curenfwithjack.org or using this link: https://events.handbid.com/auctions/2026-oct-poker-tournament #curenfwithjack #pokertournament #endNF

It's DAF Day - a new event dedicated to honoring the lasting impact of charitable giving through donor-advised funds (DAFs). As CureNFwithJack continues to expand into a new era of programming for NF1 patients, investing in groundbreaking research, and supporting the wonderful community we've grown together, we're asking our generous supporters to join us in celebrating DAF Day. Make a gift and answer the call for a better future, where we understand how NF1 impacts patients from pediatric care to beyond. As we enter the season of giving and end of year celebrations, recommending a grant from your DAF to CNFWJ will make an enormous impact. Thank you all so much, we're so grateful to have a community like you! #dafday #EndNF #supportscience #curenfwithjack #donate

We have been inspired to host a little get-together this month....a poker tournament! Join us October 30th, 7pm in Alpharetta. Portion of proceeds directly supports our mission. On the eve of Halloween, we invite you to bring your best poker face. Costumes are optional but of course encouraged! No tickets needed, but free registration required. There will be cash buy-ins at the tournament tables, and plenty of food, drink, and celebration! LINK IN BIO! 🃏💚🪙🍀🃏💚🪙🍀🃏💚🪙🍀 #curenf #CNFWJ #Atlanta #pokertournament #halloweenparty🎃

Introducing this year's Junior Advisory Board! We are so excited to have such an amazing group of high school students dedicated to CureNFwithJack's Mission! Thank you Grace Burke, Austin Valencia, Saniah Moultrie, Campbell Zalubowski, and Anna Friedman! We can't wait to follow along with all that you do. @curenfwithjack.juniorboard

Join the NF Collective his Wednesday for the Career Readiness Webinar! Register using the link in bio. This is an amazing opportunity for all students and adults living with NF to learn essential job searching skills, resume writing tips, and more! #endnf #NFcollective #curenfwithjack #NFStrong

Our 14th Annual Golf Classic is 1 month away! We are so excited to see everyone for the BEST day of the year. With your help, and with every swing, we can change the world. In addition to a wonderful day of golf, we will have an auction, which will feature a signed Jack Niklaus Flag. Jack Niklaus, the Golden Bear, is a one of the greatest golfers of all time, and has supported CureNFwithJack for several years. This flag is perfect for any golf lover! Register Now using this link: https://events.handbid.com/auctions/14th-annual-curenfwithjack-golf-classic #golftournament #curenfwithjack #endNF

An amazing time for an amazing cause. These golfers showed up for us last year, and we can't wait to do it all over again next month. Join us for out 14th Annual CureNFwithJack Golf Classic and help us make an even bigger impact on the NF community. Grab your foursome and register now. Click the link in our bio to register, sponsor, or become a volunteer! #golftournament #curenfwithjack #endNF

Thank you to @applespicenorthmetro for being this year's Player Gift Sponsor! We are so excited to have you out there with us. Together, through continued support, we can change the face of NF. For CureNFwithJack, every round we play is a step towards a cure. Our mission is to build a wrap-around approach to NF—one that advances research toward better treatments and a cure while addressing the cognitive, behavioral, and quality-of-life challenges that people with NF face along the way. Register to golf or become a sponsor by clicking the link in our bio. #applespicecateringco #curenfwithjack #golf #golftournament

Happy birthday to our co-founder, @jakeburke1! Your dedication to CureNFwithJack is inspiring and we are so grateful for all the work that you do! #endNF

For the NF1 community, Childhood Cancer Awareness Month is also an important reminder of why the importance of medical research cannot be overstated. Children with NF1 have an increased risk of certain tumors and cancers, and continued research is critical to developing better ways to detect and treat these complications. We stand together in the fight for a world where children get to be children. #childhoodcancerawarenessmonth #endNF #curenfwithjack

Join us September 30, 2026 at 7PM EST for the next NF Collective Webinar! Use the link to register now to learn more about career readiness! #endNF #NFstrong #NFcollective #CureNFwithJack

Have you registered yet? We cannot wait to see you this October 26th at Iron Horse Golf Club! Play with CureNFwithJack, where every round we play is about something much bigger than golf. Our mission is to advance a wrap-around approach to NF—funding research while expanding programs and initiatives that address the challenges people with NF face throughout their lives. Click the link in our bio to register yourself or your foursome and look at our sponsorship options. See you in six weeks! #curenfwithjack #golftournament #endnf #staywithjack

Today is National Suicide Prevention Day. CureNFwithJack cares about all aspects of a person's quality of life, which includes mental health. It's time to #endthestigma.

Join us for our 14th Annual Golf Classic. This day on the green will help us build on the exciting progress made possible by the innovative projects we continue to invest in. For CureNFwithJack, every round we play is about something much bigger than golf. Our mission is simple: to fund research and develop programs that create a more wrap-around approach to NF—advancing better treatments, addressing the challenges of living with the disease, and ultimately working toward a cure. Click the link in our bio to learn more and register! #endNF #golf #golftournament

Dr. Martin Luther King Jr., speaking to striking sanitation workers in Memphis in 1968, said it plainly: "All labor that uplifts humanity has dignity and importance and should be undertaken with painstaking excellence." Today we celebrate the labor done by all of us. The labor that makes the headlines and the work no one sees. The work that spotlights results and impact, and the ordinary labor no one pays attention to – until it is not done. At CureNFwithJack, we see and appreciate all the visible and invisible work it takes to advance NF treatments – from our steadfast and committed team, board and volunteers – to the incredible NF ecosystem of dedicated researchers, talented clinicians, collaborating nonprofits, biotech and industry who believe in our vision of a world without NF. Thank you. #laborday #curenfwithjack

New location!!! Due to the fantastic response to the upcoming NF Education Day in Atlanta, the event has moved to a larger location. Please mark your calendars, and register ahead of time! Breakfast and lunch provided. So excited for our friends @childrensatl and @childrenstumor 💚💚💚 going to be a great event for the community.

Central to CNFWJ’s mission is the involvement and support of people both within and outside of the NF community. You don’t have to be personally affected by NF to make a difference. Your time, talent, and generosity can have a profound impact. Every golfer, sponsor, donor, volunteer, and supporter helps us build on this progress and move closer to a future where people with NF have better treatments, better support, and ultimately, a cure. Go to the link in our bio to register or become a volunteer. #golftournament #curenfwithjack #EndNF #nfstrong

CureNFwithJack stands with the children and families whose lives have been changed by childhood cancer. During Childhood Cancer Awareness Month, we honor the brave children fighting today, celebrate survivors, remember those we have lost, and recognize the families, caregivers, researchers, and advocates who continue to push for better treatments and brighter futures. Every child deserves the opportunity to grow up healthy, happy, and free from cancer. #childhoodcancerawarenessmonth🎗

Thank you to @matebeverage for sponsoring our Golf Classic for the second year! We are so excited to have you out on the course. Together, through community involvement and continued support, we can change the face of NF. For CureNFwithJack, every round we play is about something much bigger than golf. Our mission is to build a wrap-around approach to NF—one that advances research toward better treatments and a cure while addressing the cognitive, behavioral, and quality-of-life challenges that people with NF face along the way. Register by clicking the link in our bio! #matevodkaproteinwater #curenfwithjack #golf #golftournament

Attention NF Community! Join the NF Collective in this Back to School Webinar THIS WEEK. Starting the school year off with the right tools to succeed is especially important for people navigating education with a rare disease. The English seminar is on August 26th and the Spanish seminar is on August 27th. Click this link or scan the QR code to register for the English seminar: https://us02web.zoom.us/webinar/register/WN_8x-QkvAIRAWcCiWqTFH4Rg#/registration Click this link or scan the QR code to register for the Spanish Seminar: https://us02web.zoom.us/webinar/register/WN_fNbSZOBRSE2P0heoitfJIg#/registration

NF1 affects every person differently. Symptoms can range widely in type and severity—from mild to complex—and no two people with NF1 experience the condition in exactly the same way. #endNF #curenfwithjack #staywithjack

Happy National Nonprofit Day! CureNFwithJack is so lucky to have worked with many amazing nonprofits and to be part of the NF Collective. Collaboration is key to a future without NF. #nonprofit #NFstrong #EndNF

Attention NF Community! Join the NF Collective in this Back to School Webinar. Starting the school year off with the right tools to succeed is especially important for people navigating education with a rare disease. The English seminar is on August 26th and the Spanish seminar is on August 27th. Click this link or scan the QR code to register for the English seminar: https://bit.ly/NFwebinarAugust-english Click this link or scan the QR code to register for the Spanish Seminar: https://us02web.zoom.us/webinar/register/WN_fNbSZOBRSE2P0heoitfJIg#/registration

Our inspiration is our very own co-founder, Jack Burke. His strength reminds us why we don't stop fighting for a cure Every. Single. Day. #staywithjack #curenfwithjack #endNF #NFstrong

August is National Wellness Month! At CureNFwithJack we're committed to supporting the whole person. We are dedicated to improving not just the physical health of those with NF, but their mental and emotional well-being as well. True wellness means caring for both body and mind, and every step toward better health helps create a better quality of life. #StayWithJack #WellnessMonth #CureNFWithJack

Happy Parent Appreciation Day to all the NF Parents out there! Remember - you are never alone. #parentappreciation #NFStrong #EndNF

We refuse to believe that anything is impossible. Having the a winning attitude is vital in the fight against NF, and CNFWJ refuses to quit. Join us today by subscribing to our newlsetter, following us on social media, and sharing our mission with your community. #endNF #NFstrong #staywithJack

JOIN US TODAY, WEDNES. JULY 22nd! Coming up next in the NF Community Webinar Series is a feature on "Navigating Stress & Cultivating Wellness." Living and loving with NF is more than research, tests, and exams - it's about quality of life for all who are touched by NF. Join our host Tracy Wirtanen, CEO and Founder of the Littlest Tumor Foundation, as we welcome guest speaker Samantha Blain. Come expand your NF network, and enjoy community this Wednesday evening. It is completely FREE! We look forward to seeing you there! 💚 Register at https://bit.ly/NFwebinarJuly2026 Reach out with any questions!

Anxiety, depression, social challenges, and chronic pain can affect many individuals with NF1. Comprehensive care includes mental health support beyond childhood. CureNFwithJack is committed to improving the quality of life of all individuals with NF, from infancy to adulthood. #EndNF #NFawareness #mentalhealthmatters

This month's Ambassador Spotlight is @marileebeth ! She has been with us from the very beginning, and on top of being an ambassador, she serves on the CNFWJ Board. Thank you for all that you do for us. We are so grateful to have such an amazing woman as part of our growing ambassador community. Thank you for all that you do for us. Check out https://www.curenfwithjack.org/ambassadors to learn more!

For over a decade, CureNFwithJack has been hosting events. These events have led to critical progress in NF research. We have been able to fund a cutting-edge biomarker project, a fellow at the Walker Lab, and research on pediatric brainstem gliomas. We believe patients cannot wait. CureNFwithJack strategically invests in the most promising science to accelerate the development of effective treatments and, ultimately, a cure for neurofibromatosis. Through attending our events, you can help us do just THIS. Go to https://events.handbid.com/auctions/14th-annual-curenfwithjack-golf-classic to register for our annual Golf Tournament on October 26, 2026! #staywithJack #curenfwithjack #NFstrong

Please join us in welcoming our new Development Manager! Arielle Goldhaber is an operations and development professional with nearly a decade of experience in fundraising, events, and building systems that help organizations thrive. Originally from Boston and now based in Atlanta, she enjoys bringing creativity and organization together—whether that means developing donor campaigns, designing graphics in Canva, or finding new ways to tell impactful stories. Outside of work, Arielle can usually be found hiking with her two dogs, tending to an ever-growing collection of plants and vinyl records, or supporting Atlanta's local underground music scene. She loves connecting with people, creating community, and believes that some of the best ideas happen over good, honest conversation and shared experiences. We can't wait to have her on this journey with us!

Weeks ago we announced the arrival of CureNFwithJack 2.0, and it is already a reality. We're thrilled to announce our partnership with CureAge Therapeutics. Together, we're advancing innovative research. We believe in their mission, and that genetic-based approaches could become one of the most promising paths to transformative therapies. Let's #EndNF together. #NFStrong #staywithJack

Year after year, the businesses and organizations that stand beside CureNFwithJack have made a lasting impact by helping fund critical NF research, bringing us one step closer to better treatments and, ultimately, a cure. As we prepare for this year's Golf Classic, we're looking for companies and community partners who want to make a difference. We need you! If your business is interested in becoming a sponsor, now is the time to join the team that's driving real progress for the NF community. Swipe to see some of our amazing sponsors from prior tournaments! Thank you for believing in our mission. #curenfwithjack #golftournament #endnf #corporategiving

Happy Fourth of July from CureNFwithJack! We hope you have a wonderful day celebrating America's #250th!

In raising awareness for NF, it is important to know the facts. While our wonderful researchers have made significant, meaningful improvements in treatments for NF over the past decade, NF still does not have a cure. We won't stop fighting until there is one. #endNF #curenfwithjack

Last week, the House Appropriations Committee included $25 million for the Congressionally Directed Medical Research Program – Neurofibromatosis (NF) Research Program in its Fiscal Year (FY) 2027 Defense spending bill. This is a major step for NF research! #endnf💙💚 #nfstrong💪🏻

"We are honored to partner with CureAge in advancing innovative gene-based approaches that have the potential to change the trajectory of neurofibromatosis. At CureNFwithJack, we believe patients cannot wait. We are committed to investing in bold, translational science that can accelerate meaningful progress from the laboratory to patients—with urgency, with hope, and with an unwavering focus on delivering better treatments and, ultimately, a cure." — Elizabeth O'Brien, Co-Founder and CEO of CureNFwithJack Read the full press release here: https://www.cureagetx.com/press-releases/curenfwithjack-joins-cureage-therapeutics #EndNF #NFStrong #staywithjack

It's that time of year again! We are so excited to be hositng our 14th Annual Golf Classic on October 26, 2026. Our golf tournaments allow us to raise both awareness and critical funds while creating lasting memories with the members of our growing community! Stay tuned for the registration link and information about sponsorships. #curenfwithjack #endnf💙💚 #nfstrong #golftournament

Happy fathers day to our co-founder, @jakeburke1! Jack, Luke, and Grace are so lucky to have such a role model! We hope your day is wonderful.

Freedom is worth celebrating! Happy Juneteenth from all of us at CureNFwithJack. #juneteenth

Attention NF Community: Join The NF Collective on June 24, 2026, for an empowering webinar for individuals affected by NF. Register below to learn how to advocate for yourself! #EndNF #NFstrong Go to this link to register: https://bit.ly/NFcollectivewebinar

Our Ambassadors are so incredibly important to us. Today, we want to spotlight the Ghent Family, who have supported CureNFwithJack since the very start. We are so grateful to have them as part of our growing community. Thank you Chuck Ghent and @b_ghent67 Ghent for staying with Jack! #curenfwithjack #endnf💙💚

Attention Golfers: Mark your calendars- our 14th Annual Golf Classic will be hosted at the Iron Horse Golf Club on October 26, 2026. We are so excited to be back on the course this Fall, and we hope to see you all there. More details to come, so stay tuned on where to get your tickets and how to get involved. For more information on how to volunteer, go to https://www.curenfwithjack.org/volunteer #golf #endNF #curenfwithjack

Here at CureNFwithJack, we focus on the whole lifecycle. That's why we want to feature this article and webinar from Children's Tumor Foundation and Dr. Ethan Lester, where he talks about resilience, and the unseen battles than individuals with NF have to face. Go to this website to learn more: https://www.ctf.org/news/2026-nf-knowledge-series-from-isolation-to-empowerment-building-hope-resilience-and-community-in-nf/

Today is to day- wishing all of those at the 3rd Annual Swing with Izzy Golf Classic a wonderful day of golf! Izzy and Stand with Izzy give us so much hope 💙💚 #endNF #nfawareness #nfstrong💪🏻

This Friday is Swing with Izzy, and we'd love to see you there! 💙 The Illinois community has always shown up for Izzy and everyone battling NF, and this Golf Classic is our chance to do it again. Together, we're funding critical research and raising the awareness needed to #EndNF. Let's make this one count 💙 💚 Link to register and support: https://birdease.com/35039/register

Happy pride month from all of us at CureNFwithJack! #pride🌈

While NF Awareness Month ended yesterday, our fight won't stop until there is a world without NF. Thank you to our entire community for sharing our mission and for supporting us. We couldn't do this without you. Visit curenfwithjack.org to learn more, find out how you can help, or subscribe to our newsletter. #EndNF #NFAwarenessMonth #staywithjack #Hope

NF doesn't discriminate. It can affect anyone, anywhere, in any family. This May, help us spread awareness about Neurofibromatosis and support those living with it every day. 🍀💙💚 #NFAwareness #CureNFWithJack #NFAwarenessMonth

This NF Awareness Month, we want to spotlight our amazing ambassadors. @steveraudc, a long-time supporter of CureNFwithJack, told us why he became an ambassador and why he stays with Jack. Thank you, Steve, for helping us in our fight against NF. 🍀💚💙 #endNF #staywithjack #NFstrong #nfawarenessmonth

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