CMT Research FoundationCommunity Leaders in 4C Program
Through the Community Leaders in 4C Program, patients, families, and supporters fund 4C research directly.
CMT4C patient community and researchers studying CMT4C · Information webinar on November 4 at 7pm Eastern; gifts to the CMT4C Community Leaders fund in November are matched, up to $25,000, with a second $25,000 match
From cmtrf.org/communityleaders4c ↗About this program
Community Leaders in 4C puts the patient community at the center of CMT4C research, combining scientific expertise with lived experience.
In the Community Leaders program, volunteer leaders take on a one-year role focused on a single CMT subtype. They work with CMTRF towards two goals: elevating research projects for their subtype, and leading the effort within their community to fund them.
The 4C committee works with CMTRF scientific advisors to identify, review, and select research projects. Our goal is to have the next projects and researchers ready to go as soon as the current projects are funded and contracted. The committee is made up of 4C community leaders as well as CMTRF leadership.
The community raises funds for those projects, and every gift is directed to CMT4C research. (85% of the gift goes into the 4C projects selected by Community Leaders; 15% of the gift goes to the research foundation to fund the support needed to carry those projects across the finish line.)
We share progress with the community through webinars and announcements, so you can see where your support is going.
Questions
How does the program work?
1. Select: The 4C committee works with CMTRF scientific advisors to identify, review, and select research projects. 2. Fund: The community raises funds for those projects, and every gift is directed to CMT4C research. 3. Follow Along: We share progress with the community through webinars and announcements, so you can see where your support is going.
Where does the money go?
85% of the gift goes into the 4C projects selected by Community Leaders; 15% of the gift goes to the research foundation to fund the support needed to carry those projects across the finish line.
Who is on the 4C committee?
The committee is made up of 4C community leaders as well as CMTRF leadership. Members listed are Mary Cate Zipprich, 4C Community Leader; Aaron Bickel, 4C Community Leader; Meghan Drummond, Chief Scientific Officer, CMTRF; and Laura MacNeill, Chief Executive Officer, CMTRF.
Is there a contact for questions?
Questions? Reach out to us at [email protected].
Details
- Who
- CMT4C patient community and researchers studying CMT4C
- When
- Information webinar on November 4 at 7pm Eastern; gifts to the CMT4C Community Leaders fund in November are matched, up to $25,000, with a second $25,000 match
- Where
- Online
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