It’s official: ACT for ALS has been extended for another five years! The reauthorization of ACT for ALS extends critical programs through 2031, continuing support for expanded access to investigational treatments and research into ALS and other rare neurodegenerative diseases. This moment reflects years of work by people living with ALS, families, caregivers, advocates, researchers, clinicians, and ALS United member organizations who shared their experiences, engaged with policymakers, and helped carry this effort forward. Together, the ALS community helped make reauthorization possible. #ACTforALS #ALSAdvocacy #ALSUnited #TogetherWeEndALS