Nov 8Seven years of research.Seven years of progress. 💙 What do the latest CROWN study results mean for people living with ALK-positive lung cancer? The findings offer an important look at long-term cancer control, including protection against cancer progression in the brain, and what these advances could mean for patients and their families. We're especially proud that ALK Positive Treasurer and ALK-positive patient Nancee Pronsati, alongside fellow patient advocate Debra Montague, helped co-author a new plain-language summary of the seven-year results. Together, they're helping make complex research more accessible while bringing attention to what matters to patients: brain health, managing side effects, quality of life, and planning for the future. Because research isn't just about how long a treatment works. It's about what that time makes possible. 💙 Swipe through to explore the findings and read the full summary: https://doi.org/10.1080/14796694.2026.2734063 #ALKPositive #LungCancerResearch #CROWNStudyLatest
Nov 8Seven years of research.Seven years of progress. 💙 What do the latest CROWN study results mean for people living with ALK-positive lung cancer? The findings offer an important look at long-term cancer control, including protection against cancer progression in the brain, and what these advances could mean for patients and their families. We're especially proud that ALK Positive Treasurer and ALK-positive patient Nancee Pronsati, alongside fellow patient advocate Debra Montague, helped co-author a new plain-language summary of the seven-year results. Together, they're helping make complex research more accessible while bringing attention to what matters to patients: brain health, managing side effects, quality of life, and planning for the future. Because research isn't just about how long a treatment works. It's about what that time makes possible. 💙 Swipe through to explore the findings and read the full summary: https://doi.org/10.1080/14796694.2026.2734063 #ALKPositive #LungCancerResearch #CROWNStudy
What does survivorship mean when you're living with ALK-positive cancer?♥ 110 · Oct 12
What’s got our Executive Director Ken Culver excited about the future of ALK+…♥ 104 · Oct 25
🔬 Help Advance CAR T-Cell Research for Oncogene-Driven Lung Cancer On October…♥ 98 · Oct 30
More than medicine.♥ 98 · Jul 26
More Research = More Dreams.♥ 86 · Nov 1
IASLC World Congress on Lung Cancer never disappoints.♥ 76 · Sep 15
What does survivorship mean when you're living with ALK-positive cancer?
♥ 110 · Oct 12
What’s got our Executive Director Ken Culver excited about the future of ALK+…
♥ 104 · Oct 25
🔬 Help Advance CAR T-Cell Research for Oncogene-Driven Lung Cancer On October…
♥ 98 · Oct 30
More than medicine.
♥ 98 · Jul 26
More Research = More Dreams.
♥ 86 · Nov 1
IASLC World Congress on Lung Cancer never disappoints.
♥ 76 · Sep 15
Second Opinion ProgramThe ALK Positive Second Opinion Program offers a unique opportunity to connect with world-class medical experts in the field of ALK-positive lung cancer.
Art TherapyArt Therapy uses art and the creative process to help participants manage stress, build community, and develop coping strategies.
- Explore with Writing
Sharing feelings and experiences on paper is a proven method to begin healing our physical and emotional well being as we live each day.
- Chair Yoga
Adapted for individuals with physical limitations, Chair Yoga focuses on gaining strength, mobility, and ease of movement, incorporating breathing and meditation to calm the mind.
Collections
Seven years of research.
Nov 8
What does more time make possible?
Nov 7
Research doesn't stop, and neither do we!
Nov 6
More options.
Nov 5
Greg, from Huntsville, AL, has lived with ALK+ lung cancer for 5 years.
Nov 5
We all dream of a better world.
Nov 238 likes
For 10 years, Colin Barton has not only lived with ALK+ lung cancer but also worked to change lives for…
Nov 260 likes
More Research = More Dreams.
Nov 186 likes
🔬 Help Advance CAR T-Cell Research for Oncogene-Driven Lung Cancer On October 18, over 200 patients…
Oct 3098 likes
Clinical Trials Update: Can GLP-1’s Tackle Lorlatinib Weight Gain?1 min read · Sep 28
Patient Spotlight: Matt Hiznay4 min read · Sep 28
Baked Honey Glazed Carrots Recipe1 min read · Sep 27
2025 Worldwide ALK TKI Revenues Exceed Three Billion Dollars1 min read · Sep 14
NXP900 + Lorlatinib: Blocking a Potential ALK Bypass Pathway2 min read · Sep 13
ALK Positive, Inc. Sponsors Real-World Registry that Confirms the Success of Modern ALK Therapy, and the Contribution of ALK Positive’s Collaborative Clinical Trial Efforts.2 min read · Aug 17
New Phase 1 Trial Will Explore AQUA07 in ALK-positive NSCLC2 min read · Aug 16
Clinical Trials Update: ALK Research Makes a Big Splash @ The ASCO Conference4 min read · Jul 20
Strawberry Goat Cheese Crostini1 min read · Jul 16
Patient Spotlight: Laura Reed5 min read · Jul 16
About
We are a patient-driven organization that seeks a cure for ALK+ cancer and works to improve patients’ quality of life and life expectancy worldwide.
ALK Positive, Inc. is a patient-founded and patient-driven nonprofit organization committed to transforming the future for everyone affected by ALK-positive cancer. What began in 2015 as a grassroots effort by Merita Carroll, a stage IV patient and oncology nurse seeking connection, has grown into a global movement of more than 3,000 patients and care partners across 55+ countries.
We’re not just here to raise awareness, we’re here to drive research, fund clinical trials, and demand better treatment options . From advocating for the inclusion of ALK in clinical studies to investing in breakthrough science, we act with urgency, because for our community, research means survival.
This is more than an organization. It’s a global force for change, made possible by dedicated volunteers, bold leadership, and a community that refuses to wait.
ALK Positive was created by Merita Carroll in 2015. She wanted a support community where ALK-positive lung cancer patients, like herself, and caregivers could share their personal experience with this condition.
Merita was a vibrant healthy young woman working as a registered nurse when diagnosed Stage IV. She was diagnosed on March 6, 2015 and, sadly, passed away on April 24, 2018.
Sandy Springs, GA
- Based in
- Sandy Springs, GA
- Founded
- 2021
- EIN
- 85-2221062
- Website
- alkpositive.org
- @alkpositiveinc
- Health